The website offers tools and information to help U.S. caregivers interact with children of different ages and face difficult subjects related to GHD. In addition to registering for future information, U.S. visitors can take a brief quiz to discover their "GHD Parenting Persona" or submit their topic areas of interest.
- Managing the challenges of treating GHD
- How to work with GHD care teams
- Understanding the social emotional issues around GHD
- Navigating insurance coverage and related challenges
- Impact of missed injections
- Links to other resources.
About Rare Disease Day
According to the National Institutes of Health (NIH), a disease is rare if it affects fewer than 200,000 people in the United States. There are more than 7,000 rare diseases currently identified and approximately 90 percent of them are still without FDA-approved medical treatments.
Rare Disease Day is sponsored in the U.S. by the National Organization for Rare Disorders (NORD®), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare diseases.
About Pediatric Growth Hormone Deficiency (GHD)1
Pediatric GHD is a serious orphan disease caused when the pituitary gland does not produce enough growth hormone. Children with GHD are not only characterized by short stature, but they also may experience metabolic abnormalities, psychosocial challenges and poor quality of life.
About Ascendis Pharma A/S
Ascendis Pharma is applying its innovative TransCon technologies to build a leading, fully integrated biopharmaceutical company focused on making a meaningful difference in patients' lives. Guided by its core values of patients, science and passion, the company utilizes its TransCon technologies to create new and potentially best-in-class therapies.
Ascendis Pharma currently has a pipeline of three independent endocrinology rare disease product candidates and one oncology product candidate in clinical development. The company continues to expand into additional therapeutic areas to address unmet patient needs.
Ascendis is headquartered in Copenhagen, Denmark, with additional offices in Heidelberg and Berlin, Germany, Palo Alto and Redwood City, California, and Princeton, New Jersey.
Forward-Looking Statements
Ascendis, Ascendis Pharma, the Ascendis Pharma logo, the company logo and TransCon are trademarks owned by the Ascendis Pharma Group. © February 2021 Ascendis Pharma A/S.
1 Backeljauw PF, et al. Endocrine Disorders in Adolescents. 2014: 292-403.
© 2026 Benzinga.com. Benzinga does not provide investment advice. All rights reserved.
To add Benzinga News as your preferred source on Google, click here.
