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Openly Rare with Paul Kidwell Podcast Launches with Conversation about Rare Disease Film Festival


Live Science PR Discusses Rare Disease Storytelling with Festival

Openly Rare with Paul Kidwell, a monthly podcast series dedicated
to the discussion around rare diseases made its debut today. The
podcast, created and hosted by Paul Kidwell, a 20-year PR veteran within
the life science industry, will feature provocative and timely
conversations with researchers, newsmakers, patient advocates, business
leaders and rare disease experts. These illuminating discussions will
focus on all facets of this complex topic that, despite its name,
impacts millions of individuals worldwide.

"The discussion around rare diseases is multi-layered and its impact
reverberates throughout all geographies, social strata and personal
demographics," said Paul Kidwell. "During my 20 years working within the
life science sector, I have had the privilege of helping rare disease
patients, researchers, caregivers and businesses share intimate stories
about their involvement in this therapeutic setting. It's this very
personal experience that I bring to Openly Rare and will help
stimulate my discussions."

Openly Rare launched today with a conversation between Kidwell
and the co-creators of "DISORDER: The Rare Disease Film Festival,"
Daniel DeFabio and Bo Bigelow. In 2017, the Festival had a successful
introduction in Cambridge, MA, with a two-day event that featured select
films, presentations, and discussions around rare diseases. The second
installment of the Festival will take place in 2019 in San Francisco.

The balance of the 2018 schedule is:
October 3, 2018: Philip R.
Reilly, M.D., author, "Orphan: The Quest to Save Children with Rare
Genetic Disorders"

November 7: Joyce Kulhawik, Emmy Award-winning arts and entertainment
critic and three-time cancer survivor

November 27: Paul G. Richardson, M.D., Clinical Program Leader and
Director of Clinical Research of the Jerome Lipper Multiple Myeloma
Center, Dana Farber Cancer Institute

The 2019 schedule is being finalized and will be announced in October,

Today's podcast and all future episodes can be found here:

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About Openly Rare with Paul Kidwell
Openly Rare with Paul
is a monthly podcast covering all aspects of rare diseases
and will feature conversations with newsmakers and leaders from the
world of biomedical and academic research, patient engagement,
caregiving, rare disease patients and their families, as well as others
who in some way have been touched by the growing number of rare
illnesses. The podcasts will cover a range of topics, including research
and treatment, the business and science of rare disease drug
development, patient storytelling, policy debates and the cultural
impact of rare diseases.

To learn more about Paul Kidwell and to hear the Openly Rare podcast, go
You can also listen to the Openly Rare podcast on Apple Podcasts, Google
Podcasts, Stitcher, Tunein, Spotify and with all Android players.

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