Market Overview

DuchenneXchange.org Hosts Free Webinar to Showcase Features of Online Platform Designed to Unite, Support and Educate Duchenne Community

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DuchenneXchange (DuchenneXchange.org),
the dedicated online platform built by the Duchenne community for the
Duchenne community, will host a free hour-long webinar for Duchenne
community members to learn about the benefits of the DuchenneXchange on
Tuesday, August 7, 2018 at 1:00 PM (PDT) / 4:00PM (EDT). Those
interested are encouraged to register and dial-in at:

Audio Details:
U.S. & Canada: 866.740.1260
Access
Code: 8722593
Registration Link:
https://cc.readytalk.com/r/5gy4l06twvd2&eom

Created by rareLife
solutions
, a health technology developer focused in rare disease,
and CureDuchenne,
a leading national nonprofit, the DuchenneXchange is a collaborative,
inclusive environment where the entire Duchenne community can share
comprehensive, safe, credible resources and information as well as get
the support they need from diagnosis to treatment to clinical trials.
All Duchenne stakeholders, including patients, families, organizations,
scientists, advocates, health care professionals, and pharmaceutical
companies, are invited to participate.

About CureDuchenne

CureDuchenne
is the leading nonprofit dedicated to extending and improving the lives
of 300,000 boys worldwide who have Duchenne muscular dystrophy, a
degenerative disease with no known cure. CureDuchenne uses an
entrepreneurial venture philanthropy model to fund impactful research
and accelerate human clinical trials. Through its CureDuchenne Cares
program, it provides confidence to families seeking valuable resources,
trains physical therapists and other health professionals on new
standards of care and provides hope, support and empowerment to the
Duchenne community. For more information, please visit www.cureduchenne.org,
and follow us on Facebook,
Twitter
and YouTube.

About
rareLife solutions

rareLife
solutions
 is the health tech, design and research team behind
oneSCDvoice, oneFAPvoice, and additional customized rare disease
platforms. rareLife solutions, focused solely on rare diseases, offers
integrated strategic and tactical community engagement plans, medical
communications and reimagined rare publication planning services in
addition to our collaborative platform as a service (PaaS) solutions for
advocacy groups, pharmaceutical and device companies, medical and
research centers, contract research organizations and professional
healthcare associations. To learn more, please visit us at http://www.rareLifesolutions.com and http://www.onevoice.world,
follow us on Twitter at @rareLifeTalks and @onevoiceworld, join us on
LinkedIn, and like us on Facebook at Facebook.com/rareLifeSolutions and Facebook.com/onevoiceworld.

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