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Alzheimer's Caregivers Determined to Lower their own Risk of Cognitive Decline, May Not be Doing Enough

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New Healthline Report Reveals Attitudes towards Disease Prevention
Differ between each Generation of Caregivers

Findings show Millennials, Gen-Xers and Boomers can all benefit
from

earlier detections, improved resources and more
emotional support

Nearly two-thirds of caregivers whose loved ones suffer from the
debilitating effects of Alzheimer's or related dementia say they would
take medication to delay the onset of their own memory loss by even six
months, if it were affordable and free of side effects. Sixty-four
percent say they've already made healthy lifestyle modifications in an
effort to prevent their own memory loss, making meaningful edits to
their diet and exercise. However, only one-third of caregivers say they
have been tested for the Alzheimer's gene. These, and other, findings
were revealed in a new report from Healthline Media, the fastest growing
health information brand, reaching 39 million monthly users in the
United States.

This press release features multimedia. View the full release here:
https://www.businesswire.com/news/home/20180530005860/en/

Healthline's State of Caregiving for Alzheimer's or Related Dementia 2018 (Graphic: Business Wire)

Healthline's State of Caregiving for Alzheimer's or Related Dementia 2018 (Graphic: Business Wire)

The report, "State of Caregiving for Alzheimer's Disease and Related
Dementia 2018," examines the current caregiving population, the
challenges they face in caring for a loved one with the disease today
and how advances in science and technology may affect caregiving roles
in the future. The report included a survey of nearly 400 active
caregivers across generations and in-depth interviews with medical
experts and advocacy groups. The full report can be accessed at www.healthline.com/health/state-of-alzheimers.

"Alzheimer's disease is on the rise, and the landscape is evolving - the
types of clinical trials, treatments, resources/support, and the
accelerated need for more family caregivers to take on the intensive
responsibility of care for loved ones," said Diane Ty, Project Director
of the Global Social Enterprise Initiative and AgingWell Hub at
Georgetown University's McDonough School of Business. "Healthline's
report helps prepare the modern patient and caregiver for the new state
of Alzheimer's disease and other dementias."

According to Healthline's report, the intimate view of a loved one aging
with Alzheimer's or related dementia is prompting more caregivers (34
percent) to be genetically tested for the disease, something millennials
(49 percent) are more proactive about than older generations (Gen Xers
36 percent, Boomers 17 percent.)

Most caregivers report that a specific incident prompted a medical
evaluation for their loved one (70 percent.) In almost half of all cases
the incident was the last in a series, though more than one quarter of
the cases were the first of its kind. Interestingly, millennial
caregivers were more likely to report a first-time incident led to a
medical evaluation (41 percent) compared to other caregiver groups
(Boomers 21 percent; Gen Xers 18 percent.)

Key Findings:

  • PATIENT
    • 67 percent take up to one year to receive a specific diagnosis
    • 41 percent had MCI (mild cognitive impairment) before an
      Alzheimer's or related dementia diagnosis
    • 75 percent of Alzheimer's or related dementia patients remain home
      or in a private residence despite the disease's progression
  • CAREGIVER
    • 71 percent of caregivers are female
    • 72 percent of caregivers say their health has worsened since
      becoming caregivers
    • 1 of 2 caregivers have had their career and/or finances impacted
      due to caregiving responsibilities
  • CAREGIVER RESOURCES
    • 42 percent of caregivers use in-person support groups, online
      communities/forums
    • 55 percent of caregivers say they are not getting adequate
      emotional support

"We know our readers - both patients and their caregivers - have
individual health journeys and we always strive to understand their
specific paths, and how our content can best support them," said Tracy
Stickler, Editor in Chief, Healthline. "The latest "State of…" report
helps deepen our understanding of the evolving needs of the caregiver so
we can create content and programs to better support them in making
critical decisions.

Healthline's "State Of…" series examines consumer lifestyle data
gathered by the website's research team. "State of…" research results
are paired with editorial content illustrating topics from the
consumer's perspective, highlighting credible, expert-informed insights
to inform health decisions. The "State of…" series kicked off in July
2017 with the "State of Fertility," followed by the "State of Care" and
"State of Cancer." "State of Caregiving for Alzheimer's Disease and
Related Dementia 2018" adds to the growing body of research in key
disease states affecting Healthline's readers - the modern healthcare
consumer and their caregivers. Additional studies in this series will
continue in 2018, examining other key disease states affecting
Healthline's readers.

About Alzheimer's Disease and Related Dementia

According to the Alzheimer's Association, Alzheimer's disease is a type
of dementia that causes problems with memory, thinking and behavior.
Dementia is not a specific disease. It's an overall term that describes
a group of symptoms associated with a decline in memory or other
thinking skills severe enough to reduce a person's ability to perform
everyday activities. Alzheimer's accounts for 60 to 80 percent of
dementia cases. There are currently 5.7 million Americans living with
Alzheimer's, with 47 million people with the disease worldwide. One in
every 10 Americans aged 65 or older is living with Alzheimer's, with
two-thirds being women. Alzheimer's is the costliest disease in the
United States, in raw expense of more than $270 billion annually, but
also in the incalculable toll it takes on patient and caregiver alike.

About Healthline's The State of Caregiving for Alzheimer's or Related
Dementia 2018

Healthline conducted a survey of nearly 400 active caregivers
representing millennials, Gen X, and Boomers, and interviewed a dynamic
group of medical and care experts to best understand the constraints,
needs, and unspoken truths of living with and caring for an Alzheimer's
patient. The objective of the survey was to understand the role and
responsibilities of unpaid Alzheimer's or related dementia caregivers,
identify the resources and tools used by these caregivers and gauge the
impact caregiving has on the health, career, and finances of caregivers.
Respondents were screened to confirm US residency, age 18+, and unpaid
caregiving for someone diagnosed with Alzheimer's or related dementia.
The survey was fielded between February 16, 2018 – February 23, 2018.

About Healthline

As the fastest growing consumer health information site — with 39
million monthly visitors in the US (comScore, Jan 2018) — Healthline's
mission is to be our users' most trusted ally in their pursuit of health
and well-being. Healthline provides socially-inspired,
medically-reviewed and data-driven content to help us all live stronger,
healthier lives. Healthline's flagship website http://www.healthline.com
takes a whole-person approach to health and wellness information to
support the modern health consumer.

Source: Healthline's State of Caregiving for Alzheimer's and
Related Dementia Survey. Panel sourced by Survey Sampling International
(n=384 Alzheimer's/Dementia caregivers) from February 16, 2018– February
23, 2018.

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