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The Assistance Fund Establishes Financial Assistance Program for Patients with MPS VII - Sly Syndrome

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Individuals offered access to financial support for copayments,
health insurance premiums and incidental medical expenses

The Assistance Fund, an independent charitable patient assistance
foundation that helps patients and families facing high medical
out-of-pocket costs, today announced the launch of the
Mucopolysaccharidosis (MPS) VII - Sly Syndrome Financial Assistance
Program, providing financial support to individuals with this disease.
The program offers funds that can be used for copayments, health
insurance premiums and incidental medical expenses.

"We at the Assistance Fund are excited to be able to help more
individuals who face high medical expenses with our newest program, the
MPS VII - Sly Syndrome Assistance Fund," said Mark P. McGreevy,
President, The Assistance Fund. "Patients with this rare condition
deserve access to treatments regardless of their ability to pay, and we
are dedicated to supporting them in receiving the therapies and
procedures that they so desperately need."

MPS VII, also known as Sly syndrome, is a mucopolysaccharide disease
that occurs in an estimated 1 in 250,000 newborns. Caused by a recessive
gene, this condition prevents the body from breaking down the
mucopolysaccharides heparan sulfate, chondroitin 4-, 6-sulfates and
dermatan sulfate due to a lack of an enzyme.1 The disease
causes progressive damage, with clinical courses varying greatly.
Symptoms can include a slowing of development in the first three years
of life, followed by a progressive regression in skills; nose, throat,
chest and ear problems that cause breathing difficulties and respiratory
infections; atypical physical features; and significant problems in bone
formation and growth, among others.2

"Individuals with MPS VII face a lifetime of medical interventions to
improve their quality of life and slow the progression of the disease,"
said Terri Klein, Interim CEO and Director of Development and Operations
at the National MPS Society. "Treatment is vital to help prevent
irreversible organ and tissue damage, but the high costs associated with
care can make it out of reach for many families. With support from The
Assistance Fund, more patients with MPS VII will undergo the treatment
regimens that can best preserve their health."

Individuals interested in learning more or determining their eligibility
for assistance should visit tafcares.org
or call (855) 514-5111 to speak with a patient advocate.

For a full list of the funds available at The Assistance Fund, visit tafcares.org.

About The Assistance Fund

The Assistance Fund is an independent charitable patient assistance
foundation that helps patients and families facing high medical
out-of-pocket costs by providing financial assistance for their
copayments, coinsurance, deductibles and other health-related expenses.
The Assistance Fund currently manages more than 30 funds – each of which
covers the FDA-approved medications that treat a specific disease. Since
its founding in 2009, The Assistance Fund has helped more than 43,000
adults and children access the medicines they need to stay healthy or
manage a chronic condition. To learn more about The Assistance Fund, or
for information on how to donate, please visit tafcares.org.

References
1. "MPS VII (Sly
syndrome)." National MPS Society. 2017, November. Retrieved from https://mpssociety.org/learn/diseases/mps-vii/.
2.
"A Guide to Understanding MPS VII." National MPS Society. 2017,
November. Retrieved from https://mpssociety.org/cms/wp-content/uploads/2017/04/MPS_VII_2008.pdf.

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